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The CdLS Story Bank

The CdLS Story Bank is a collection of stories from parents, relatives, friends, and caregivers who wish to share their CdLS experience.

These stories let others know they are not alone. They also provide inspiration, insight and, at times, a little humor.
Help build the CdLS Story Bank. Share your story today.


Our little angel was born June 28, 2012, unexpectedly, by emergency C-section five weeks early due to small measurements and lack of amniotic fluid. He was 4 pounds 13 ounces, and 16 inches long. At birth we discovered that he...

Continue reading Declan.

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