On the day Blake was born, my life changed forever. Born one day early than predicted, he weighed 5 lbs 14 oz and was 18 inches long. He had multiple medical issues at birth. He spent the first 4 months of his life in the NICU & PICU at Cooks Childrens Medical Center of Fort Worth Texas. While in there, he had breathing troubles and a congenital heart defect. His first open heart surgery was at the age of 3 weeks, at which they did a PA Banding around the main artery to slow down his significant fast breathing. Five days later while in the PICU, his intestines got infected somehow and they had to do surgery on that. They had to put in a colostomy bag into place until the surgery healed.


When he was a little over 3 months old, he had his Fundoplication/Nissen. A G-Tube/Feeding tube placed in his tummy. He was and still to this day, is being tube fed. Mostly for calorie intake now, and whenever he's sick and can't swallow his foods, then we can put meds through his feeding tube direct into his tummy or orally. He still can't chew solid foods to this day. He only can swallow it. And can drink liquids orally as well. All his foods have to be pureed. He loves Cheetos too.


He got pneumonia a few times too while in the NICU. We almost lost him shortly after his first heart surgery one time he stopped breathing I think. That was one of the longest days of my life! Waiting and praying that he will make it though his ordeal. He got to come home for the first time after at 4 1/2 months old. He didn't start talking and or walking until about age of 2 1/2 yrs old. I thought he was autistic, but that was ruled out. I learned I could teach him sign language for communication and that worked until he started talking, now he rarely stops! He still knows some sign language basics. He was also diagnosed as being on the borderline of having Aspergers Syndrome as well. He began school at the age of 3 yrs old.


His behavioral issues were challenging as they are still today. He has been, and is always, the life of every party he encounters. Blake can turn heads in a blink of an eye! Get your attention when he wants it. School has been difficult for him sometimes due to his sensory issues and behavioral control issues. Not many teachers are educated in that department or don't know how to handle kids like Blake, so they would rather put them into another class or school. They wanted to kick him out in Kindergarten! But he charmed his way into first grade! Now he will be in the 6th grade next school session.


Blake is severely developmentally delayed and will never be able to live on his own independently. He will always need guidance as well.

Blake likes everything to be placed in a perfect kinda way! For instance, his train cars, they have to be placed in a certain way before he will stop placing them where he wants them to go before he will come to eat or go anywhere. He won't wear mixed-matched clothes either. The colors have to be the same or have some of the same color to coordinate with the other half of clothing he's wearing.


Blake loves to sing and dance and act silly. He loves trains, reading and playing online kids games on PBS Kids or Cartoon Network. His favorite cartoons are SpongeBob Squarepants, The Mr. Man Show, Adventure Time with Fin and Jake, and Sesame Street.


To understand Blake, I would have to say you would have to get to know him and his personality. He can sometimes be difficult to deal with and other times be very happy and loving. Overall he is a happy kid and very challenging. Blake knows how to make you laugh until you cry of laughter even when he's in time out! I would never change a thing about him other than his bad behavior issues if I could change them. I love my son with all of my heart.

Story Bank Home > Story Bank Entry: Blake