We found out Landon had CdLS at 6 months old after lots of testing and wondering. (He is 2.5 now) He is the happiest kid ever and we are so proud of where he is today! We attend speech and hippo therapy weekly as well as PT/OT every other week. Landon has a severe oral aversion so we will attend the inpatient feeding program at Kennedy Krieger this summer! We are so excited to officially join the CdLS community!