Home | Calendar | Español | Media Room | Shop | Contact Us

Search:

   


Kayla


OUR TESTIMONY AT THE AGE OF 22 GOD BLESSED ME WITH A SPECIAL GIFT, BABYGIRL KAYLA, BORN 7/17/13 , I WAS WAITING FOR HER A WHOLE 9MNTHS, EXCITED BUT YET SCARED. HAVING A CHILD AND RAISING HER ON MY OWN WAS GOING TO BE A CHALLENGE BUT BY THE GRACE OF GOD I WAS GOING TO DO IT. I NEVER MISSED A DOCTORS APPOINTMENT, AND I BECAME A GERM FREAK LOL, NOTHING OR NOBODY WAS GOING TO HARM MY PRECIOUS BUNDLE OF JOY AND LIFE CHANGER. I DIDN'T SMOKE AND I DIDN'T DRINK AND DIDN'T WANT IT AROUND ME, BECAUSE LIKE I SAID NOTHING WAS GOING TO HARM HER IN ANYWAY, I WAS HER PROTECTOR. I WENT TO MY FINALE ULTRASOUND APPOINTMENT AND WAS TOLD I WAS HAVING A BABY GIRL, PERFECTLY HEALTHY AND ALL MINE, MY MINI ME IS WHAT I CALLED HER, THEY TOLD ME HER DUE DATE WAS GOING TO BE 7/17/2013, AND WHAT DO YOU KNOW SHE ARRIVED ON THAT EXACT DAY AT 7:22 AM 5LBS 7OUNCES. BUT UNPON DELIVERY OF MY KAYLA,MY PERFECTLY HEALTHY BABY GIRL WASN'T SO HEALTHY, SHE WAS BORN WITH ONLY ONE ABNORMAL ARM, AND SECOND ARM THAT WAS ELBOW LENGHT , I WAS DEVASTATED I FELT MY WORLD CRUMBLE.... SHE WAS BORN WITH CORNELIA DE LANGE SYDROME, A SYNDROME THAT CAUSED ABNORMALITIES IN HER UPPER EXTREMITIES, AMONGST OTHER THINGS WHICH WOULDN'T BE DETECTED UNTIL SHE GOT OLDER. I WAS LOST AND THE DOCTORS COULDN'T ANSWER ANY QUESTIONS AS TO WHY THIS WASN'T DETECTED BEFORE BIRTH. ONLY ADVICE I WAS GIVEN IS THAT GIRLS/WOMEN MY AGE USUALLY ABANDON SICK KIDS LIKE KAYLA, BUT BECAUSE MY GOD IS ALMIGHTY AND POWER HE GAVE ME THE STRENGTH AND COURAGE TO NOT BE ONE OF THOSE WOMEN, SO I FAUGHT FOR HER WITH ALL I HAD AND MORE..... ME AND BABY GIRL WENT HOME AFTER SPENDING 3MONTHS OF HER LIFE IN THE HOSPITAL. BUT THINGS STARTED TO GET WORSE AS TIME PROGRESSED, SHE WAS FIRST DIAGNOSED WITH A WILMS TUMOR THAT HAD COVERED HER RIGHT KIDNEY WHICH RESULTED IN HER KIDNEY BEING REMOVED AND MONTHS OF CHEMOTHERAPY, BUT LET ME TELL YOU KAYLA WAS A FIGHTER , SHE MADE IT THROUGH THAT WITH FLYING COLORS , AFTER THAT MAJOR SURGERY ME AND BABY GIRL WAS BACK HOME AGAIN, LAUGHING AND SLEEPING CUDDLED UP NEXT TO EACH OTHER, OH AND LETS NOT FORGET LISTENING TO MUSIC, KAYLA LOVED MUSIC, IT EASED HER MIND AND MINES..... AS MONTHS WENT BY KAYLA HAD A FEW MORE HOSPITALIZATION BUT NOTHING WAS GETTING HER DOWN AND I WAS RIGHT THERE WITH HER TO CHEER HER ON , I BECAME PREGNANT WITH MY SON BUT NO MATTER HOW BIG OR TIRED I WAS, WHEREVER KAYLA WAS I WAS GOING TO BE RIGHT THERE WITH HER, EVEN SPENT A FEW NIGHTS ON THE HOSPITAL FLOOR RIGHT NEXT TO HER BED AT 8 1/2 MONTHS PREGNANT NO MATTER WHAT I WAS NOT LEAVING HER SIDE, ON DECEMBER 25 2015, WHICH WOULD HAVE BEEN KAYLA FIRST CHRISTMAS EVER TO SPEND AT HOME AND NOT IN THE HOSPITAL, I RUSHED KAYLA TO THE HOSPITAL BECAUSE OF COMPLICATIONS WITH BREATHING, THAT NIGHT SHE WAS DIAGNOSED WITH PNEUMONIA AFTER SPENDING THREE DAYS IN THE HOSPITAL KAYLA WAS RELEASED BACK AT HOME DANCING, FLIPPING, AND LISTENING TO MUSIC ON HER IPAD, SHE REALLY LOVED TWINKLE TWINKLE LITTLE STAR⭐️.... SHE DEFEATED ALL ODDS AGAINST, BIG OR SMALL...AFTER FINISHING HER 7 DAY ANTI-BIOTICS, I NOTICED THAT KAYLA WAS SHOWING SIGNS AND SYMPTOMS OF HAVING PNEUMONIA AGAIN, SO I TOOK HER TO HER PEDIATRICIAN AND TOLD HER MY CONCERNS SHE THEN TOLD ME THAT KAYLA WAS FINE, THAT SHE WAS JUST CONGESTED, AND THAT SHE WASN'T GOING TO PRESCRIBE NO MEDS BECAUSE KAYLA JUST HAD A COMMIN COLD AND WOULD EVENTUALLY GET OVER IT ONCE THE WEATHER WARMED UP, DAYS WENT BY AND AS BEING KAYLA MOTHER I KNEW SHE WASN'T BREATHING RIGHT AND RUSHED HER TO CHILDREN HOSPITAL LOS ANGLES WHERE SHE RECEIVES ALL HER PRIMARY CARE, AND KAYLA WAS STILL UP LISTENING TO MUSIC DOING HER THING LOL WASN'T NOTHING GETTING HER DOWN EVEN IF I WAS, SHE SHOWED ME SHE HAD ENOUGH JOY FOR THE BOTH OF US..... OVER NIGHT KAYLA WENT FROM BEING ON THE RECOVERY FLOOR TO BEING RUSHED TO ICU, AND NEEDED TO BE INTUBATED, SHE HELD ON FOR AWHILE, THROUGH IT ALL SHE WANTED TO HEAR HER MUSIC, BUT BECAUSE THE PNEUMONIA HAD CAUSED AN INFECTION IN HER LONGS HER FIGHT TO BREATH WAS LIMITED, SO SHE HAD TO STAY SEDATED, SHE WAS TIRED AND SHE TOLD ME I JUST DIDN'T WANNA BELIEVE IT, WHEN THE DOCTORS CAME TO ME AND SAID SHE MIGHT NOT MAKE IT, AND WHAT DO I WANT THEM TO DO, I SAID EVERYTHING TO KEEP HER ALIVE.... AFTER 30 MINS OF THEM PUSHING FLUIDS TO KEEP IN HER BODY AND DOING COMPRESSIONS TO KEEP HER HEART RATE UP AND BLOOD PRESSURE HIGH, I LOOKED AT MY BABY GIRL AND SHE WAS GONE EVEN THOUGH HER HEART WAS BARELY BEATING I KNEW HER FIGHT WAS OVER SO I MADE CHOICE, I TOLD THE DOCTORS TO LET HER BE.... BUT DO NOT FEEL SAD BECAUSE TO BE ABSENT FROM THE BODY IS TO BE PRESENT WITH THE LORD.. WHEN KAYLA WAS FIRST BORN I WAS SCARED, NOT OF WHAT ME AND HER WERE FACED WITH BUT OF THIS CRUEL WORLD,SCARED OF THE THOUGHTS AND STARES, SILENT WHISPERS AND THE FROWN UPONS, THE SHAKING HEADS AND THE MIS-UNDERSTANDING OF WHAT AT THE TIME I COULDN'T UNDERSTAND, I WAS ANGRY, FURIOUS AT THE WORLD, HOW COULD I DO EVERYTHING RIGHT AND MY RESULTS WERE AT THE TIME EVERYTHING BEING WRONG, I BLAMED MYSELF, MAYBE MY PAST AND KARMA HAD CAUGHT UP TO ME , SO I HID WHAT WAS GOING ON FOR MY PROTECTION AND HER'S, I TRIED MY BEST TO PRESENT KAYLA TO THE WORLD AS WHAT EVERYBODY WANTED TO SEE PERFECTION, BUT SHE WAS PERFECT, BEAUTIFUL AND LOVING, AND I MADE SURE THAT I SHOWED HER THAT EVERYDAY, I MADE SURE THAT SHE DIDN'T WANT FOR NOTHING AND EVEN THOUGH THE WORLD WOULD'VE LOOKED DOWN ON HER, I WAS LOOKING UP TO HER, SHE WAS MY SAVIOR, SHE WAS MY MOTIVATION, MY STRENGTH AND MY JOY SHE WAS MY TEACHER, SHE TAUGHT ME HOW TO LOVE AND REALLY MEAN IT, SHE SHOWED ME THINGS I COULDN'T EVEN IMAGINE WAS POSSIBLE, SHE GAVE ME HOPE WHEN I HAD EVERY REASON TO GIVE UP, SHE TAUGHT ME HOW TO FIGHT WHEN WE WERE AGAINST ALL ODDS, SHE GAVE ME LIFE EVEN THOUGH I GAVE HER HER'S AND A DIFFERENT PERSPECTIVE OF IT, SHE BROUGHT ME CLOSER TO GOD, SHE WAS MY REASON AND I WAS HER'S AND WHEN HER MISSION HERE ON EARTH WAS COMPLETED SHE LET ME GO, THOUGH RIGHT NOW I WONT AND CANT UNDERSTAND WHY, I WAS FIGHTING FOR HER BUT SHE WAS READY TO SAY GOOD-BYE, HER BATTLE WAS NOT LOST IT WAS WON. RIP BABY-GIRL.....

Story Bank Home > Story Bank Entry: Kayla